Ghost Boy

Ghost Boy

The Miraculous Escape of A Misdiagnosed Boy Trapped Inside His Own Body

eBook - 2013
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In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, vivacious boy he had once been. What no-one knew is that while Martin's body remained unresponsive his mind slowly woke up, yet he could tell no-one; he was a prisoner inside a broken body.

Then, in 1998, when Martin was twenty-three years old, an aromatherapy masseuse began treating him and sensed some part of him was alert. Experts were dismissive, but his parents persevered and soon realised their son was as intelligent as he'd always been. With no memory of the time before his illness, Martin was a man-child reborn in a world he didn't know. He was still in a wheelchair and unable to speak, but he was brilliantly adept at computer technology. Since then, and against all odds, he has fallen in love, married and set up a design business which he runs from his home in Essex.Ghost Boyis an incredible, deeply moving story of recovery and the power of love. Through Martin's story we can know what it is like to be here and yet not here - unable to communicate yet feeling and understanding everything. Martin's emergence from his darkness enables us to celebrate the human spirit and is a wake-up call to cherish our own lives.
Publisher: Nashville :, Thomas Nelson,, [2013]
ISBN: 9780857203328
Characteristics: text file,rda
1 online resource
Additional Contributors: OverDrive, Inc. - Distributor

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AL_ELAINE Aug 21, 2017

You'll cry, you'll cheer, and you'll rage! An incredible true story of a boy that became inexplicably sick to the degree that he was paralyzed at the age of 12. It is the courageous journey Martin Pistorius to reclaim his life to something that he wants to live. Wow!

JCLColleenO Jul 06, 2017

This is quite a compelling first-person account of the life of Martin Pistorius, who was completely paralyzed during a mysterious illness when he was 12. For years he lived in a vegetative state, and no one thought that he would recover, although his parents hoped for it. Eventually, Martin "wakes up", although it is gradual, as he becomes aware of his surroundings, but he has no memory of his past. The problem is that no one could tell that he was mentally awake, as his body still would not respond to his wishes. A volunteer at the nursing home suspected that he was intelligent, and encouraged his family to have him tested for compatibility with using assistive devices for speech. The rest of the story is how he gradually came out of his shell and began to believe in himself enough to master computers and to live a more independent life. It is a struggle that hard for us to imagine.

d
DALE MUCKERMAN
Sep 24, 2016

Amazing story.

Manateestarz Jul 28, 2016

An interesting look into the mind of someone who is trapped in his own body. Mr. Pistorius did a great job of portraying his family's struggles and his own inner torment. I found it especially revealing when he discussed his return to consciousness and the difficulties he had in making choices and assuming an adult role. I had not really seen that ideaaddressed anywhere before. I recommend this book.

While the protagonist has suffered a great deal, and the parents were heroic in their advocacy for their son, the actual writing is not very good. There are gaps in the plot... what happened to the abusers, how did that romance get off the ground so fast? I would recommend the Diving Bell much higher than this book.

m
modestgoddess
Jun 25, 2016

Unimaginable, what this man went through - some of it hard to read, because some of his "carers" never realized he'd find a voice. Poignant, touching, and amazing. Wonderful how his life changed when one who truly cared, noticed he was "there" again. He gave a TED talk in 2015: https://www.youtube.com/watch?v=WD1IX1AFRZg
which, now that I know more about electronic voices, makes me want to post this link too:
https://www.vocalid.co/how

1
12bambus
Feb 03, 2016

Good

k
kcdornan
Dec 27, 2015

An incredible read. Possibly the quickest I have ever read a book as it was truly so difficult to put down. Martin's experience is unbelievably sad at times, and like others here have mentioned there is horrible abuse he suffered, but overall his life story is inspirational and empowering. As an able-bodied person, I really appreciate the new perspective I have been given to learn to appreciate all that each of us has.

2
2monkeyreaders
Dec 08, 2015

This is just an amazing story that shows that not all who are (nearly) helpless are thoughtless. I would be so bold to say that this is a must read for all caregivers.

a
advega718
Sep 22, 2015

Poignant. Inspirational. Astounding.

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12bambus
Feb 03, 2016

12bambus thinks this title is suitable for between the ages of 1 and 99

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